
In
a mere matter of weeks following Millie Smith and Lewis Cann’s revelation that
they were expecting twin baby girls, a heart-wrenching truth unveiled itself:
only one would endure the journey ahead.
On
the 30th of April, after enduring a precarious 30-week pregnancy, Smith
delivered a pair of identical twins, Callie and Skye. Regrettably, Skye’s frail
existence flickered away within a mere three hours.
In
the neonatal intensive care unit (NICU), Callie slumbered solo in the
incubator, while her adoring yet grieving parents maintained a vigilant watch.
Amidst the cluster of infants, an overwhelmed mother of healthy newborn twins,
unaware of Smith’s poignant circumstance, inadvertently remarked that she was
“exceptionally fortunate” not to have twins.
Crushed
by these thoughtless words, the new mother found herself lost for words, unable
to articulate her profound grief. It was then, amidst her despair, that she
discovered Skye’s enduring legacy, embodied in a delicate purple butterfly.
In
November of 2015, Millie Smith and her partner, Lewis Cann, received the joyous
news of their impending parenthood. Smith, with a familial history of twins,
had an intuitive inkling of a duo in the making. Ten weeks later, medical
confirmation arrived, affirming that they were expecting identical twin
daughters.
However,
the elation of doubling their familial blessings was short-lived. Less than a
fortnight later, the couple’s world was shattered when they learned that one of
their unborn daughters had a devastating and fatal condition, rendering her
incapable of surviving beyond birth.
During
a pivotal ultrasound, a deafening silence from the doctor overshadowed their
initial excitement at seeing their two unborn babies. Intuitively, both Smith
and Cann sensed the impending somber revelation. The doctors conveyed the grim
news that one of the twins had anencephaly, a rare and severe birth defect,
affecting only one in 4,600 babies across the United States. This condition
left a baby devoid of critical portions of the brain and skull, and nearly all
infants born with anencephaly succumbed shortly after birth.
Confronted
with the agonizing certainty of one baby’s imminent demise and potential risks
to the other, the couple resolved to proceed with the exceedingly high-risk
pregnancy.

Over
the ensuing months, the twins-to-be were christened Skye and Callie. “We
believed that Skye deserved a name before her brief existence came to an end,”
Smith remarked. “Anticipating her survival for mere seconds or minutes, I
yearned for her to have a name during that fleeting moment.”
The
symbolism behind “Skye,” she elucidated, was that it represented a place of
perpetual presence, a celestial reminder of their cherished daughter.
Premature
labor struck Smith on the 30th of April, compelling an emergency C-section. To
help navigate this heart-wrenching loss, the couple was accompanied by a
“bereavement midwife” during the childbirth. They were ushered into a specially
designated room known as the “Daisy Room,” a haven where families could share precious
moments with their newborns before and after their inevitable passing.
“When
our girls were born, both of them cried. This was an immensely significant
moment, as we were previously informed that Skye would remain silent and
immobile,” recounted Smith. She expressed profound gratitude for the three
precious hours they shared with Skye before her departure. “We held Skye close
as she peacefully slipped away. It was the most excruciating moment of our
lives. I have never experienced heartbreak of such magnitude. Yet, I take
solace in her valiant struggle to spend those fleeting moments with us.”
While
Callie, born prematurely, continued her stay in the NICU, sharing the unit with
three other sets of twins, the passing of time seemed to dim Skye’s memory.
After approximately four weeks, the silence surrounding Skye’s existence became
palpable. Those around Smith, the other families in the unit, remained
blissfully ignorant of her harrowing ordeal.
One
fateful morning, an unwitting mother, whose twins also resided in the NICU,
casually remarked to Smith that she was “fortunate” not to have twins.
“None
of the other parents were privy to our situation, to Skye’s existence. The
comment was innocently made in jest…they could not have known that I, too, had
once been blessed with two,” Smith lamented. She continued, “But that remark
nearly shattered me. I fled the room in tears, and they were left bewildered,
unaware of the reason for my anguish. A simple emblem would have averted that
distressing situation.”
In
that poignant moment, Smith recognized the imperative to create a symbol that
would serve as an eloquent advocate for parents grappling with the loss of a
child, ensuring that such misunderstandings would never recur.
She
conceived a poster for the NICU, conveying to both medical personnel and
visitors that an incubator adorned with a purple butterfly signified the loss
of one or more babies in a set of multiples.
“I
chose butterflies as a tribute to those babies that took flight, and the color
purple because it transcends gender distinctions,” explained Smith.
The
concept of the purple butterfly, now under the auspices of the Skye High
Foundation, has proliferated to hospitals spanning several nations across the
globe.
Today,
Callie is a vivacious and joyful seven-year-old, and Skye’s memory endures
through purple butterfly mementos and other initiatives aimed at aiding
families with babies like Skye worldwide. These purple butterflies have assumed
diverse forms, from ornaments and cards to blankets and stuffed animals.
“While
I may never eradicate such heart-wrenching experiences, the establishment of
support networks and the implementation of simple symbols like stickers can
alleviate the burden. It is an ordeal of unparalleled magnitude,” Smith
reflected.
For
any parent, the loss of a child, regardless of their age, is an insurmountable
hardship. Millie Smith stands as a beacon of hope, dedicated to extending a
helping hand to others in their darkest hours.
Kindly
share this narrative so that others may comprehend the significance of a purple
butterfly beside a newborn’s incubator!
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